Vaikų, ištiktų cerebrinio paralyžiaus, kūno judesiai ir jų šeimų išorinė ir tarpasmeninė gyvenimo kokybės sferos

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Collection:
Mokslo publikacijos / Scientific publications
Document Type:
Straipsnis / Article
Language:
Lietuvių kalba / Lithuanian
Title:
Vaikų, ištiktų cerebrinio paralyžiaus, kūno judesiai ir jų šeimų išorinė ir tarpasmeninė gyvenimo kokybės sferos
Alternative Title:
Difference of an external and interpersonal living space of children cerebral palsy who have different motor possibilities
In the Journal:
Specialusis ugdymas [Special Education]. 2004, Nr. 1 (10), p. 23-29
Summary / Abstract:

LTStraipsnyje nagrinėjama, kaip skiriasi vaikų, ištiktų cerebrinio paralyžiaus ir turinčių skirtingas judėjimo galimybes, ir jų šeimų gyvenimo išorinė ir tarpasmeninė sferos kokybė. Tyrime dalyvavo 15 vaikų, ištiktų cerebrinio paralyžiaus. Jų kūno judesių motorika įvertinta GMFM (Gross motor funetion measure) standartizuota metodika. Atlikta šių vaikų šeimų anketinė apklausa. Vaikai pagal gebėjimą aktyviai judėti suskirstyti į dvi grupes: vaikščiojančius, kurių kūno judesių vidurkis bendroje skalėje buvo 85,6%, ir nevaikščiojančius, kurių judesių vidurkis - 11,5%. Nustatyta, kad išorinė gyvenimo kokybė abiejų grupių buvo panaši, išskyrus tai, kad ribotų judesių nevaikščiojančius vaikus auginančių šeimų pajamos vienam asmeniui buvo didesnės. Tarpasmeninė gyvenimo kokybė abiejų grupių vaikus auginančiose šeimose buvo nevienareikšmė. Ribotų judesių nevaikščiojantys vaikai rečiau buvo baudžiami, su jais tėvai dažniau žaidė, užsiėmė taikomąja fizine ir mėgstama veikla. Susilaukti daugiau dėmesio iš artimųjų ir vaikus aptarnaujančių institucijų dažniau norėjo vaikščiojančių vaikų šeimos. [Iš leidinio]

ENChildren with cerebral palsy have different levels of seriousness and usually children, who are not able to move due to functional disorders and have to lie in bed, get less attention than those who can move. The aim of the survey was to assess the difference of an external and interpersonal living space of children who have different motory possibilities. 15 children with cerebral palsy participated in the survey. There was carried out a Gross motor function measure according to standardized methodology. There was used a questionnaire (Gradeckiene and Zaborskis, 2000) that parents of these children had to fill in. The average of movements was 85,6 percent in total scale of walking children and 11,5 percent in the group of children who had to lie in bed. According to the results of the survey, children who had to stay in bed spent more time with mother and children who were able to walk - with father. 66,7 percent of children who kept to their bed and 55,6 percent of children who could walk had their own rooms. There were more unemployed mothers who had walking children. Mothers of children who had to keep to their bed worked less than 8 hours per day and fathers of these children worked more than 8 hours per day. Half of the families with children who stayed in bed spent up to 500 Litas for one family member per month and 33 percent - up to 300 Litas. More than half of the families with children who could walk spent up to 300 Litas per month, 22 percent - up to 500 Litas. Parents spent almost the same amount of money for the needs of children's health in both groups.Analysis of relationship between parents and children has shown that parents explained the reasons of improper behavior for 16,7 percent staying in bed and for 33,3 percent of walking children, 33,3 percent and 55,6 percent were reproached and shamed. There were more children who were not punished among walking children. The number of persons satisfied with interpersonal family relationships was the same in both groups. Almost every day mothers played with their children, watched TV, spent time for children favorite activities, went in for sports, visited relatives, friends and neighbors. Fathers spent less time with their children's in both groups but gave more attention for children who had to stay in bed. Children did not have many friends. Half of the families needed mental, psychological and moral help. Families with walking children prefened this kind of help more than families of the other group. The help of social care department was not good enough. Parents of walking children were more satisfied with workers of pre-school institutions than parents of children who kept to their bed. Families with walking children required more attention from relatives and institutions that took care of children. [From the publication]

ISSN:
1392-5369; 2424-3299
Permalink:
https://www.lituanistika.lt/content/43223
Updated:
2020-04-03 18:22:01
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